I’m Sevi. This is my story.

sav

My name is Sevi. I am from Greece and I was born in Aug. 1992.

I was diagnosed with Gaucher, type 1, in 2013.

When I was born I had huge and fat spleen and liver. Also, I was always a thin child with low hematocrit but my pediatric doctor gave me only vitamins and didn’t understand that something was wrong with me.

Continue reading

Advertisements