Update: New Theme to the Site

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I’ve made some changes to the site! I wanted to give it a fresh, new, more user-friendly look! I went with the daisies and the yellow background because I felt like those were happy and positive colors.

Here’s what’s new:

  1. All of the posts now have a preview and a “continue reading” link below them that you’ll click if you want to read the full story.
  2. I also added a form to the “submit your story” section to make it easier to share your gaucher stories!
  3. Be sure to click the “Follow” button in the bottom right hand corner to follow my blog and receive emails whenever a new post is added!
  4. Lastly, I added a new category to the site called Inspiration. I’ll be posting an inspirational quote once a week. It is my hope that these quotes will uplift our spirits and encourage us to continue to be strong every single day.

Update: First Post of 2017

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I know I’ve been MIA for a while, but I’m still here! Since I’ve graduated school and started a new job, life has been pretty busy. As you may already know, I stopped getting Cerezyme infusions in December of 2015.  I’m taking Cerdelga now, which is the oral medication for the treatment of Gaucher Disease. Cerelga has helped to somewhat “normalize” my daily life, but I will always remain connected to the GD community.

Starting this blog allowed me to connect with so many other GD patients all over the world. It made me realize that GD does not look like one person. GD has many colors and speaks many different languages. I also learned that even though type 1 is the most common, we, as a community, cannot neglect the stories and experiences of those who are effected by types 2 and 3. I really want my blog to reflect more of those cases too.

With that being said, I have an announcement!

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