What's Gaucher Stories?

About the site

Gaucher Stories is dedicated to raising awareness about Gaucher Disease by sharing the stories of those affected by it. Providing Gaucher patients, parents and caregivers with a place to openly share their unique experiences, the site is meant to serve as a save space to inspire, support and encourage the community.

Hear from the community

Latest Posts

I’m Lauren. This is my story.

My name is Lauren Edwards and I was diagnosed with Type 1 Gaucher Disease when I was 18 years old. This information came as a shock to me because I was just …

Trip to NY for the NGF Patient Conference

October is Gaucher Awareness month and I was honored to be selected as a member of the National Gaucher Foundation’s (NGF) first-ever ambassador program. As ambassadors, our first task was …